Benita’s Inspiring Journey: A Rare Disease Day Testimonial (video)

On this Rare Disease Day, we are honored to share Benita’s courageous journey battling dermatomyositis, a rare autoimmune condition that profoundly impacts her daily life. Dermatomyositis not only affects her skin but also challenges her muscles, turning simple tasks into formidable obstacles.

Resilience and optimism

Benita’s story serves as a beacon of strength and resilience. Despite the hurdles she faces, her spirit remains unbroken, fueled by hope for a brighter tomorrow. In her own words, she shares her aspirations for the future: “My hopes for the future and living with this disease is that I’ll get at least more stability and I’ll be able to travel again. I want to be able to spend time with my friends and family more without having to worry that I might catch something from them so my hope is that there would be better medications to get me to that point and there would be greater awareness that people will not have to go so long to get the help that they need.”

Benita fights a courageous battle against dermatomyositis, a rare autoimmune condition that profoundly impacts her daily life

Benita’s optimism and determination inspire us all. Her journey underscores the critical need for continued research, innovative treatments, and heightened awareness surrounding rare diseases like dermatomyositis. As a biotech company dedicated to advancing healthcare solutions, we stand with Benita and countless others in their fight against rare diseases.

Watch Benita’s testimonial

To further amplify Benita’s message and honor her journey, we invite you to watch her testimonial video below. Together, let us raise awareness, foster hope, and support those affected by rare diseases on this meaningful Rare Disease Day.

Join us as we unite to make a difference in the lives of individuals like Benita, transforming challenges into triumphs and paving the way for a brighter, more inclusive future in healthcare.

A rare autoimmune disease


is a rare autoimmune disease characterized by inflammation of the muscles and skin. It primarily affects the muscles closest to the trunk of the body, causing muscle weakness, difficulty swallowing, and fatigue. Additionally, individuals with dermatomyositis often develop distinctive skin rashes, including a purple or reddish discoloration on the eyelids and over the knuckles, elbows, knees, and other joints. This condition can significantly impact daily activities and quality of life, making simple tasks challenging.