Privacy Notice for Patients and Patient Representatives

Last update : 22 April 2022

We (Galapagos NV located Generaal De Wittelaan 11 A3, 2800 Mechelen, “Galapagos”, “we,” or “us”) are committed to ensure the protection of personal data of all individuals who are currently collaborating with us, including patients and patient representatives. Your personal data are handled and protected with the utmost care, in accordance with the requirements imposed by European and local data protection laws.

In this privacy notice we explain the principles that we apply, in our capacity as a controller, when we process patients and patient representative’s personal data. It applies to all personal data that is collected and processed in any format, whether electronic or paper.

1. The personal data we collect

We process the personal data us only for specific purposes and only if we have a legal basis to do so. 

Our purpose Categories of personal data we collect from you Our legal basis to process your personal data

Get your input and insights in patient-related matters

  • Personal identification data and contact details ( e.g name, surname, title, photo, email address and profession)
  • Your input and insights in patient-related matters
Our legitimate interest to receive information on patient related matters in order to develop medicines

Get your testimony about your disease

  • Personal identification data and contact details (e.g. name, surname, title, photo, email address and profession)
  • Video and/or audio recordings
  • Your health data (e.g. your disease, your symptoms and the medical treatment you follow)
  • In some cases, your financial data (e.g. your IBAN number)

Your explicit consent

2. How long we keep your personal data

We will keep your personal data as long as we have a legitimate interest to keep it unless you withdraw the consent you gave us to process your personal data. We frequently review the personal data we hold and delete it when we no longer need it.

3. Sharing your personal data with third parties

We obtain assistance or call on third parties as virtual platforms (e.g.Within3) for the abovementioned purpose. These third parties will be required to process your personal data only in accordance with our instructions and must maintain reasonable security of your personal data.

It may occur that data about you is shared within the Galapagos group of companies if this is necessary to achieve specific purposes. We take appropriate measures to ensure that all the entities of the Galapagos group are submitted to the same or equivalent data protection rules. If the entity is located outside the EEA, we will take the necessary measures to ensure the equivalent protection as within the EEA.

As a general rule, the data that we collect from you is not transferred outside the EEA. If we, in exceptional circumstances, do transfer data outside the EEA, we will appropriately inform you about this and we will ensure it is protected employing the following safeguards:

4. Security of your personal data

We acknowledge our responsibility to ensure an appropriate level of security with regard to your personal data. Therefore, we have implemented various technical and organizational security measures in order to protect the personal data against loss, alteration, accidental or unlawful destruction, unauthorized disclosure of, or access to the personal data.

5. Your rights

When we collect and use your personal data, you enjoy a number of rights which include:

You can exercise those rights by sending a request to our Data Protection Office at After verifying your identity and applicability criteria, we will answer your request within one month of receipt of your email.

6. Changes to this Privacy Notice

Changes to this Privacy Notice can be made from time to time, in accordance with European and local data protection laws. When we change the content of this Privacy Notice, we will change the date and version number of the ‘last update’ of this Privacy Notice.

7. Contact

If you have any questions or comments with regard to the contents of this Privacy Notice, you can contact our Data Protection Office by sending an email to